Rodina, jejíž tváře mění tvar.
A FAMILY in North Sumatra, Indonesia, are living with a rare condition that causes their faces to change shape. Out of the six children of the Manurung family, four of them are living with an undiagnosed and incredibly rare facial condition. Suyra told Truly: “The fact is, our faces they have changed shape but we accept it and just live with it. In my opinion, growing up with this condition made me feel inferior. But now, I don’t feel like that anymore.” Despite many suggesting the family had been cursed, they have realised their condition must be genetic, as their father is also affected. The family are yet to visit a doctor for any diagnosis and, due to the unusual nature of their looks, they have had to get used to people reacting negatively to their appearance.
Follow the family here:
YouTube : www.youtube.com/keluargamanurung
Instagram : www.instagram.com/keluargamanurungofficial
Facebook : https://facebook.com/keluargamanurung…
Videographer: Jefri Tarigan
Producers:?Dav Rich and Ruby Coote
Editor: Vanessa Nascimento
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